RESOURCES

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Pediatric Critical Illnesses List

Children Critical Illnesses Insurance

A pediatric critical illness arises from the rapid onset of a severe, life-threatening condition that impacts one or more vital organ systems. It is marked by an imminent risk of death without immediate medical intervention.

Pediatric Genetic Conditions

WVU Medicine Children’s Genetic Counseling

Rare Diseases (NORD)

Pediatric genetic conditions are health disorders in children resulting from abnormalities in their genes or chromosomes. These conditions can include birth defects, chronic illnesses, developmental delays, and sensory impairments.

Epilepsy

Kennedy Krieger Institute (KKI) Epilepsy Clinic

Epilepsy is a chronic neurological condition characterized by recurrent, unprovoked seizures. It is the fourth most common neurological disorder in the world.

Seizures are episodes of abnormal brain activity that can cause a variety of symptoms, including: 

  • Involuntary movements (e.g., convulsions, twitching, staring)

  • Loss of consciousness

  • Confusion or disorientation

  • Changes in behavior or personality 

Advocacy

WV FAST Program (Family Advocacy, Support, and Training)

Child and family advocacy involves advocating for children, young people, and families to ensure their rights are upheld and respected. It focuses on empowering them to make informed decisions. Child advocates support children in expressing their feelings and wishes, while also guiding them and their families through difficult situations.

West Virginia Birth to Three (Early Intervention Program)

Early Intervention Contact Information by State

West Virginia Birth to Three is WV’s system of services for children 0-3 years old who have a delay in their development (or may be at risk of having a delay) and their family.